While designing YouQuest, our focus was to find out directly from families what kind of support really mattered. What would actually help when dementia exerts its grip in this earlier than expected stage of life? Coming soon, the pilot year evaluation report will feature stories about how our service is having a positive impact on family life.

Our intent has always been to help both those diagnosed and their support system, whoever that might be – a spouse, a sibling, a son or daughter, or a friend – as the young-onset care partner has many different faces.

As a weekly service from September 2018 to mid-November 2019, we are proud to report on these key metrics to illustrate the ‘boots-on-the-ground’ assistance to families:




  • Care partners have received over 4500 total hours in respite time to help manage life around this diagnosis – the way they need to, for their family. (Equivalent to $157,795 in private care, based on $35/hour rate).
  • On-site volunteers have contributed over 2100 hours to ensure our service delivery model was feasible, always with a smile on their faces and ready to lend a hand.
  • Participants have gathered for 53 service days and an average of 3.5 hours/day of actual physical activity – that’s over 1800 hours of wellness with their peers.

We are so grateful for the countless hours invested by our dedicated volunteer board and committee members, and the many valued external advisors that have helped us on our way.