Creating a community for people with young onset dementia and their families to foster an active lifestyle.
To promote health and well-being for people with young onset dementia and their families by ensuring access to recreation therapy, counselling, and peer support resources.
WHY IS YOUNG ONSET DEMENTIA SUCH A UNIQUE CHALLENGE?
While Alzheimer’s disease is the most common form of dementia, symptoms of young-onset dementia can include the inability to manage executive functions or changes in speech, behaviour and self-control. Early signs are often wrongly attributed to stress, marital issues, depression, anxiety, psychosis and/or normal aging.
People with young-onset dementia live better when actively engaged in their community
Families are told to ‘get their affairs in order’, even though people with young-onset dementia are usually in otherwise good physical health. Research indicates this diagnosis may take twice as long as for seniors, while young-onset care responsibility averages nine years.
People with young-onset dementia may be in early, middle or late stage. Each person’s experience is unique, presenting challenges for families seeking answers and a path forward. Changing roles and relationships, financial challenges, and ineligibility for support impacts family responsibilities such as work, parenting, and caring for elders.
✓ Individual role in managing health
✓ Timely, age-appropriate support
✓ Meaningful community participation
✓ Equal access to physical activity
✓ Friendships and camaraderie
✓ Family-oriented, consistent resource
✓ Add your voice
✓ Share your story
✓ Give your feedback
✓ Increase community awareness
✓ Join the YouQuest community
✓ Learn about young onset dementia
✓ Bring your expertise
✓ Get active with others
✓ Break down the dementia stigma
✓ Refer volunteers to YouQuest