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OUR VISION

Creating a community for people with young onset dementia and their families to foster an active lifestyle. 

OUR MISSION

To promote health and well-being for people with young onset dementia and their families by ensuring access to recreation therapy, counselling, and peer support resources.

“The benefits for the young onset dementia population

and the impact of a community approach makes this innovative program unique.

The support for families and care partners is a critical part of why the service

provides such great value to the health system.”

 

PORTFOLIO MANAGER, CENTRE FOR AGING + BRAIN HEALTH INNOVATION
YouQuest MAJOR FUNDER

WHY IS YOUNG ONSET DEMENTIA SUCH A UNIQUE CHALLENGE?

While Alzheimer’s disease is the most common form of dementia, symptoms of young onset dementia can include the inability to manage executive functions or changes in speech, behaviour and self-control. Early signs are often wrongly attributed to stress, marital issues, depression, anxiety, psychosis and/or normal aging.

 

People with young onset dementia live better when actively engaged in their community

Families are told to ‘get their affairs in order’, even though people with young onset dementia are usually in otherwise good physical health. Research indicates this diagnosis may take twice as long as for seniors, while young-onset care responsibility averages nine years.

People with young onset dementia may be in early, middle or late stage. Each person’s experience is unique, presenting challenges for families seeking answers and a path forward. Changing roles and relationships, financial challenges, and ineligibility for support impacts family responsibilities such as work, parenting, and caring for elders.

YouQuest is scalable and replicable
to any urban, rural or remote community
with a recreation centre.

KEY OUTCOMES

✓ Individual role in managing health
✓ Timely, age-appropriate support
✓ Meaningful community participation

✓ Equal access to physical activity
✓ Friendships and camaraderie
✓ Family-oriented, consistent resource

JOIN

✓ Add your voice
✓ Share your story
✓ Give your feedback
✓ Increase community awareness
✓ Join the YouQuest community

VOLUNTEER

✓ Learn about young onset dementia
✓ Bring your expertise
✓ Get active with others
✓ Break down the dementia stigma
✓ Refer volunteers to YouQuest


  • Become a YouQuest Supporter... Inspire Others to Follow Your Lead!

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SUPPORT

✓ Understand the value proposition
✓ Collaborate to help families
✓ Provide your insights
✓ Foster funding opportunities
✓ Share the YouQuest vision

“We get as much out of this experience as the participants and families.”

KELLY M. – VOLUNTEER MUSICIAN