“Outcomes for young onset patients are greatly enhanced by access
to services designed for and attended by their peers.”
DR. ERIC SMITH, MD, MPH, FRCPC, FAHA
DIRECTOR, COGNITIVE NEUROSCIENCES CLINIC, UNIVERSITY OF CALGARY
Improving Quality of Life
YouQuest improves quality of life for people with young onset dementia and their caregivers. A non-profit, YouQuest addresses a void for this underserved community in Canada.
Filling the Gap in Services
YouQuest is practical daytime support in a public recreation setting.
- Participants have an inviting place to engage in meaningful activities co-planned with recreation therapists and volunteers.
- Caregivers have peace of mind and a full day to maintain work, family life and their own health.
YouQuest is a rehabilitative intervention for a terminal diagnosis that typically leads to inertia and isolation.
Participants define their needs and decide how to spend their day.
YouQuest Delivers on a Promise
- Fosters public understanding of the unique needs of people with young onset dementia in an established community environment.
- Builds social connections, supports autonomy and independence in a meaningful role without the stigma of dementia.
- Keeps families together, delaying person’s relocation to long-term care facilities incompatible with their age and cognitive abilities.
Cost-efficient and Scalable
- YouQuest is designed to expand into other urban, rural and remote communities by utilizing existing recreation facilities.
People with dementia (aged 40-64 years)
- Calgary & Area: 1,419 people
- Alberta: 3,890 people
- 1 in 10 of AB dementia population
(Source: AB Interactive Health Data Application Statistics, 2017)
RECREATION THERAPY TEAM
Beverly has over 30 years experience as a Recreation Therapist in: dementia programming, memory cognition, creative intervention for clients, caregivers and families. Beverly’s passion is in providing caregiver support, volunteer and staff training, public education and group facilitation. Over the past 10 years she has facilitated the Memory PLUS community program for individuals and caregivers coping with early stages of dementia.
Recognizing the great need to support individuals diagnosed with Young Onset Dementia, Beverly has joined the YouQuest team in effort to increase awareness and develop effective programing alternatives in a community-based setting.
Melissa Olin has more than 18 years experience as a Recreation Therapist with strong skills in disability adjustment and transition strategy for wellness during life change: after injury, palliative care, mental health and dementia diagnoses.
Melissa specializes in community resource management, assessment and community re-integration. Melissa joined the YouQuest team because she believes in the benefits of appropriate and meaningful community-based therapeutic programming.
Cindy has extensive project management experience as a publisher, writer, editor and executive assistant. Her involvement with young onset dementia began when her father-in-law was diagnosed at age 52, and continues with her husband who was diagnosed in 2007 at age 48. As a member of the Southwood Young Onset Care Partner Group, Cindy knows there is a better way to help people facing dementia to enjoy a desirable quality of life. Through recreation activities, being with peers and having skilled support to pursue one’s interests, she will ensure that YouQuest provides an inviting place to belong and gives families true opportunities for respite.
Myrla is a consultant with a background in corporate, health, and technology and stewardship projects. After a family health crisis, she became a caregiver — an experience that put focus on what really matters – and created the drive to be a social entrepreneur. As an inspiring health promotion alterative to premature long-term care, Myrla sees YouQuest as an opportunity for individuals to find their own potential and to live better within the community. We all share the responsibility to nurture strong communities; care partners need to know we support them to manage the many and often conflicting responsibilities for their younger families.
John left his career as an estate administrator with a national bank at age 48 because he experienced cognitive difficulties due to dementia. Although he no longer participates in many of his favourite sports, he strives to stay active and has found a welcome place in Calgary’s vibrant disc golf community. John contributes his ideas to YouQuest from a user’s point of view, and enjoys seeing how the service is evolving. He puts a focus on keeping things positive for his family. YouQuest will embody his personal motto, to ‘have a good day, every day’ for the benefit of all people and their families living with reality of young onset dementia.
Hopeton has over 30 years of diverse strategic leadership experience, revolving around serving the communities he lives in and cares for. He is currently a consulting CEO for Bearspaw First Nation, Eden Valley; his previous roles include Director of Community Wellness for Wesley First Nation; Deputy Reeve of Rocky View County and Councillor of Division 8; Founder of TCS Family Services, the first agency in Calgary area to provide counselling and support services in families’ homes. Hopeton moved to Canada from Jamaica at the age of 17. He attended the University of Calgary and received his MBA in Aboriginal Economic Development from Cape Breton University.
Glenn is an active member of the Alberta Therapeutic Recreation Association (ATRA) and considers it an honour to be a Recreation Therapist encouraging individuals to make informed leisure choices. Glenn was a Transit Operator for over 23 years and achieved his Bachelor of Physical Education at the University of Alberta. Glenn has since worked in adult day support programs, supportive living and long-term care, and continues to build partnerships with community organizations and the clients he supports. As Marketing Director for the Canadian Therapeutic Recreation Association (CTRA) Glenn is actively involved in the evolution of national professional standards.
MARY ELLEN SELBY
Mary Ellen has over 25 years of business experience as a senior human resources leader in a variety of industries including Oil and Gas, Transportation, Residential Real Estate, Agriculture and Not for Profit organizations. She has a breadth of Human Resources expertise, in addition to deep proficiency in leadership coaching, organizational design, and talent management. She is currently a consultant to organizations on human resources issues, in addition to devoting much of her time to volunteering with not for profit organizations. She has an MBA from the University of Calgary and a Bachelor of Arts from the University of Alberta. As a caregiver for a parent with dementia, Mary-Ellen is committed to treating people living with dementia with respect and compassion.
Jean is a Chartered Professional Accountant with extensive experience in financial management, internal controls and process improvement. Through many years of active and diverse consulting within the Calgary and international business communities Jean has cultivated a broad range of financial expertise and a strong commitment to accountability and transparency. A love for experiencing different cultures combined with her business background has led Jean to volunteer with various organizations around the globe – the Calgary Immigrant Women’s Associate as a professional mentor in Calgary, Circulo de Amigas in Nicaragua, Puente a la Salud Comunitaria in Mexico, and Accounting for International Development (AfID), London England. Jean actively holds a professional accounting designation with the Chartered Professional Accountants of Alberta and a Teaching Certificate (TEFL) from Oxford Seminars.
VOLUNTEER RESEARCH ADVISOR
Dr PAMELA ROACH
Dr. Roach has provided invaluable volunteer advisory support to YouQuest since its inception. Her research on the importance of meaningful activity for people with young onset dementia illustrates why the recreation centre environment is appealing to participants. Pamela has worked with families to better understand day-to-day life and transitions for those living with this diagnosis and their caregivers. Her expertise will assist YouQuest in engaging families, volunteers, and health providers to evaluate this unique community-based resource.