“Life gets turned upside down by this diagnosis;
it changes roles and responsibilities for everyone.”
CINDY M. – WIFE & PRIMARY CARE PARTNER
JM: DIAGNOSED with FRONTOTEMPORAL DEMENTIA; YOUQUEST ADVISOR
“I stopped working at 48 because of young onset dementia. Staying at home alone during the day was isolating and I missed my routine of going to the office and interacting with colleagues. I realized I need to be active to help my family. Just because I have dementia doesn’t mean that I should stop having fun in life!
I am proud to be an advisor to YouQuest. I suggest things for the Recreation Therapists to consider such as how to manage transitions throughout the day. I’m also on the YouQuest board where I contribute ideas on how the future might look for the organization and what families need in a wellness community.
About a year into my diagnosis I worked with cognitive rehabilitation therapists who gave coping strategies to make my days more successful. It’s rewarding to recommend these strategies to other participants. I feel a sense of purpose sharing what I’ve learned over the last 12 years.
YouQuest helps me remain positive and have a good day, every day.”
CH: WIFE, PRIMARY CARE PARTNER
“I was married to a smart, funny, caring, compassionate man but I now consider myself a widow because my husband as I knew him is gone due to young onset frontotemporal dementia.
Once passionate about his career, he didn’t seem to enjoy his job anymore and was having trouble with his relationships. It was devastating when he lost his job and was denied long term disability – our family was shattered.
He has lost purpose, friendships and now spends lonely days isolated at home. When at work, I constantly worry about his well-being, what he is doing and if he is safe.
Physically active, he had few options as there are no relevant activities for people his age who have dementia. YouQuest is a godsend because it provides social and recreation activities in a dignified manner. Thanks to YouQuest, I get a break and can keep working to support our family.”